Living with FSHD has profound impacts on every part of peoples’ lives, including work, social interactions and family relationships. Community members have shared their moving perspectives of living with FSHD with our team and have told us what it would mean to them to have a potentially transformative therapeutic for their disease. These insights are guiding our efforts to develop therapies that deliver meaningful functional improvement for people living with FSHD.
Meet Laura and Chelsea
Joint perspective of a mother and daughter’s journey with FSHD